Oh, It’s You Again
At times, parenting can be a complete guessing game, right? We like to think we know what we are doing, but are quietly questionning our every move and decision. Are we feeding them the healthiest diet available, are they excelling as they should in school, are they doing enough extra activities, are they doing too… Read More Oh, It’s You Again
Thank You, Rare Disease Day
I haven’t written in a very long time, and this day somehow motivated me to get back. So thank you, rare disease day for bringing me back. But boy, do I wish we had never crossed paths. The past couple of years have been an exhausting blur, filled with lots of ups and downs, and… Read More Thank You, Rare Disease Day
Thank You.
Let’s talk about fundraising. We all have been involved in this is some way or another. It all starts when we are little…raising funds for school, sports, hobbies, etc. It teaches us about helping others, and reminds us that when we all get together, anything is possible. But how does it feel when the funds… Read More Thank You.
Our New Travel Bed, Designed By Parents
Traveling with kids is always a challenge, especially when there is not a safe place for them to sleep. It’s easy when they are little, but when you outgrow the portable beds, things become hard, and you have to get creative. Up until now we’ve had a love/hate relationship with our travel bed, the Privacy… Read More Our New Travel Bed, Designed By Parents
Who Will Help?
The first three months (yes, I said months!) of the quarantine were brutal. They were filled with uncertainty, fear, pain, anger and an overwhelmingly sense of helplessness. No, this was not because of COVID (although, it did help to heighten it). It was because something was going on with Logan, something we didn’t have an… Read More Who Will Help?
When A Plan Comes Together
When we first bought our house I had David (and his little helper, Jack) build me a raised garden box. I thought it would be so cool to grow our own veggies, and envisioned a perfect little Pinterest scenario. The boys did an outstanding job on the box – David is a super craftsman (all… Read More When A Plan Comes Together
Disney…Magical Anxiety
When you think of Disney you think of magical experiences, thrilled and exhausted children (and adults) and all around happiness. Sure, it’s exhausting for the parents, and takes a while to recover from the emptied bank accounts, but it’s worth it, right? Our first trip a couple of years ago was great! The kids loved… Read More Disney…Magical Anxiety
Dead Enders And…A Tornado?
If you’ve read through my blog you may have seen posts on our annual Dead End Halloween party. Each year has it’s unique twist, which makes me sort of hold my breath when the next one rolls around. Well, this year did not disappoint! It was anticipated to be a muggy and wet night, but… Read More Dead Enders And…A Tornado?
Celebrating 7
7… where have the years gone?! Every birthday with any of my kids is always bittersweet. We are always so proud of how far they have come and are amazed at the little people they are turning out to be. But, my heart also hurts that time is creeping away. As that saying goes, the… Read More Celebrating 7
One Perfect Day, For Sure
Logan got to experience something truly magical, something that will forever hold a warm place in all of our hearts. On Monday morning, surrounded by the kindest people, kids and families just like ours, she paddled out into the ocean and surfed. Yes, our sweet little girl who cannot walk yet on her own caught… Read More One Perfect Day, For Sure