7… where have the years gone?! Every birthday with any of my kids is always bittersweet. We are always so proud of how far they have come and are amazed at the little people they are turning out to be. But, my heart also hurts that time is creeping away. As that saying goes, the… Read More Celebrating 7
These days there is an awareness day for just about everything. It is awesome, but very bittersweet for us. September 18th is Pitt Hopkins Awareness Day, and as much as I love our new extended family, I wish we were not a part of this day. The Bitter I try to keep things positive, but… Read More The Bittersweet Awareness Day
Every year we fundraise for the Pitt Hopkins Research Foundation’s largest and most successful event of the year…UPenn’s Million Dollar Bike Ride. UPenn will match ALL donations up to $50,000, which is HUGE for our families!!! Every year our amazing friends and family help us reach our personal goal, and we are especially excited this… Read More Logan is in Training For…
Last week we had the opportunity to head down to Atlanta, GA…with just Logan! A clinic specifically for Pitt Hopkins was organized by a fellow PTHS mom, and founder of the Pitt Hopkins Research Foundation. It was fantastic. We had a little over a month to start planning…and stressing. We needed to bring all medical… Read More Logan Takes Us To Atlanta!