Coming up with a title for this post has kept me from writing this for a very long time now, so I’m just sticking with it. Now, Logan is far from a princess. She is more of a tom boy in lilac glasses and pigtails, who prefers to wrestle around with her brothers than play… Read More The Princess and the Pea?
Well, it was a HUGE success!!! Over $14,000 was raised between donations, ticket sales and silent auction items. How incredible is that?! Thank you is not enough to all who contributed and danced the night away with us, and we (our family and our Pitt Hopkins family) will be forever grateful to Caroline for choosing… Read More How Successful Was The Pitt Hoppin’ Dance-a-Thon?
Logan’s Pitt Hoppin’ Dance-a-Thon is this weekend! We are overwhelmed by the amount of love and support that has been pouring in, and I wanted to pass along two fantastic opportunities to all you beauty lovers. BeautyCounter and Rodan+Fields are now joining OSEA Malibu as part of Logan’s luxury family!!! My dear friend, Erika Jordan… Read More Beauty Gives Back!
Do you ever respond to emails or texts in your head, but realize that you never actually sent your response and totally forgot about it? Well, I do. A lot. And I guess this has trickled into my blog posting as well. I just went to publish posts that I thought I had written, but… Read More When Life is Just Too Busy!
How many times have you been told to trust your gut? Of those hundreds of times, how many times was your gut right? Now think about WHO has given this advice to you the most. I bet a good amount of you would, without any hesitation, say your mom. I know I would. I’m going to… Read More Hey Moms…You Have A Superpower!
This is Alexandra. She is a beautiful little girl who was also diagnosed with Pitt Hopkins not too long ago. I remember when her amazing mom, Nicole, introduced her family and shared their story. I felt as if I could have written it myself. Their journey was practically a mirror image of ours! Nicole put together this… Read More Meet Logan’s Little Pitt Sister!
I’m going to let you in on one of my all time favorite finds. I wish I found this company years ago, especially in my 20’s. It is the one product that makes me feel like I am back in the ocean or by the sea. The products are amazing…they are 100 % natural, non-toxic,… Read More OSEA…Heaven in a Pretty Bottle
I just received an email from Audrey Davidow (one of the amazing moms who have gotten the ball rolling on research), and am beyond excited and hopeful for Logan’s future! The Lieber Institute was one of the first funded labs for PTHS, and they have possibly come up with a treatment! This is amazing not only for… Read More Potential Treatment!!! Wow!!!
When we were first diagnosed with Pitt Hopkins, our doctor told us not to compare Logan to the statistics that we found on the internet. He said that since this is such a rare syndrome the information available is outdated, and certain aspects may or may not apply to her. This was both a sigh of… Read More Logan’s Version Of Pitt Hopkins
For the past three years Logan has been our little mystery. She was born in the summer of 2012, and was by far my easiest pregnancy and delivery! She was a happy, healthy baby, full of smiles and giggles. She was a dream baby! At around 6 months we started noticing that she was not… Read More Where We Began