This year was the year of the art show! David and I are still in awe over the New York show, and now we are completely blown away by the hearts and talents of everyone in our lives. This last fundraiser of the year was absolutely spectacular. Our niece, Lindsay chose to organize an art… Read More A Night of Art for Pitt Hopkins
There is something bittersweet about being part of a day like today. I don’t think anyone ever wishes to be part of this community. If you are part of it, either you or someone you love is facing some undesirable circumstances. However, being a part of this day means that you have surrounded yourself with… Read More Rare Disease Day 2018
I always try to look at the positive aspects of every situation, especially with Logan. Finding the good in things, even if it is just the tiniest speck, often helps get me through this hand we were dealt. And, it makes me a better mom and advocate for all of my kids. Well, it took… Read More When Answers Can’t Be Told
October 7, 2017 will go down as one of the best days ever for our family. And, quite certainly for Logan. If you haven’t heard (we’ve only been talking about it on social media for a week!), Logan was chosen by UNC Children’s Hospital to do the coin toss at the University of North Carolina’s… Read More Logan Becomes a Tar Heel!
Well, it was a HUGE success!!! Over $14,000 was raised between donations, ticket sales and silent auction items. How incredible is that?! Thank you is not enough to all who contributed and danced the night away with us, and we (our family and our Pitt Hopkins family) will be forever grateful to Caroline for choosing… Read More How Successful Was The Pitt Hoppin’ Dance-a-Thon?
How many times have you been told to trust your gut? Of those hundreds of times, how many times was your gut right? Now think about WHO has given this advice to you the most. I bet a good amount of you would, without any hesitation, say your mom. I know I would. I’m going to… Read More Hey Moms…You Have A Superpower!
For the past three years Logan has been our little mystery. She was born in the summer of 2012, and was by far my easiest pregnancy and delivery! She was a happy, healthy baby, full of smiles and giggles. She was a dream baby! At around 6 months we started noticing that she was not… Read More Where We Began