This is Alexandra. She is a beautiful little girl who was also diagnosed with Pitt Hopkins not too long ago. I remember when her amazing mom, Nicole, introduced her family and shared their story. I felt as if I could have written it myself. Their journey was practically a mirror image of ours! Nicole put together this… Read More Meet Logan’s Little Pitt Sister!
I just received an email from Audrey Davidow (one of the amazing moms who have gotten the ball rolling on research), and am beyond excited and hopeful for Logan’s future! The Lieber Institute was one of the first funded labs for PTHS, and they have possibly come up with a treatment! This is amazing not only for… Read More Potential Treatment!!! Wow!!!