The first three months (yes, I said months!) of the quarantine were brutal. They were filled with uncertainty, fear, pain, anger and an overwhelmingly sense of helplessness. No, this was not because of COVID (although, it did help to heighten it). It was because something was going on with Logan, something we didn’t have an… Read More Who Will Help?
These days there is an awareness day for just about everything. It is awesome, but very bittersweet for us. September 18th is Pitt Hopkins Awareness Day, and as much as I love our new extended family, I wish we were not a part of this day. The Bitter I try to keep things positive, but… Read More The Bittersweet Awareness Day
Check this thing out! This is Logan’s new bike, and it’s not just any bike. This is an adaptive bike, geared and fitted just for her. It is the ultimate therapy tool with maximum fun all in one! We have our dear friend, Rob (that’s him up above), to thank for this. Rob was one… Read More Coolest Bike For the Coolest Kid!
Every year we fundraise for the Pitt Hopkins Research Foundation’s largest and most successful event of the year…UPenn’s Million Dollar Bike Ride. UPenn will match ALL donations up to $50,000, which is HUGE for our families!!! Every year our amazing friends and family help us reach our personal goal, and we are especially excited this… Read More Logan is in Training For…
Last week we had the opportunity to head down to Atlanta, GA…with just Logan! A clinic specifically for Pitt Hopkins was organized by a fellow PTHS mom, and founder of the Pitt Hopkins Research Foundation. It was fantastic. We had a little over a month to start planning…and stressing. We needed to bring all medical… Read More Logan Takes Us To Atlanta!
Logan’s oldest cousin, Caroline, is hosting a dance-a-thon for Pitt Hopkins research. How awesome is that!? It is going to be an amazing night full of dancing and fun! The event will be held under a tent with a live DJ, dinner, dancing, giveaways, and chances to win prizes. Click HERE for more info!… Read More Pitt Hoppin’ Dance-a-thon!
For the past 3 years the Pitt Hopkins Pedalers have been raising money for research through the Million Dollar Bike Ride. Logan is not riding this year, but we are helping out any way we can. This year every dollar raised for Pitt Hopkins (up to $50,000) will be doubled!!! So, if you are interested… Read More The Million Dollar Bike Ride