This is Alexandra. She is a beautiful little girl who was also diagnosed with Pitt Hopkins not too long ago. I remember when her amazing mom, Nicole, introduced her family and shared their story. I felt as if I could have written it myself. Their journey was practically a mirror image of ours! Nicole put together this… Read More Meet Logan’s Little Pitt Sister!
I just received an email from Audrey Davidow (one of the amazing moms who have gotten the ball rolling on research), and am beyond excited and hopeful for Logan’s future! The Lieber Institute was one of the first funded labs for PTHS, and they have possibly come up with a treatment! This is amazing not only for… Read More Potential Treatment!!! Wow!!!
For the past three years Logan has been our little mystery. She was born in the summer of 2012, and was by far my easiest pregnancy and delivery! She was a happy, healthy baby, full of smiles and giggles. She was a dream baby! At around 6 months we started noticing that she was not… Read More Where We Began