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Knock Out Shot
Whenever we feel any kind of sickness coming on, this is what we turn to first. I do my best to arm our family with things like daily vitamins, elderberry syrup and essential oils, but sometimes I just can’t keep up with it all every day. Ok, if I’m being honest, I’m lucky if I… Read More Knock Out Shot
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The Bittersweet Awareness Day
These days there is an awareness day for just about everything. It is awesome, but very bittersweet for us. September 18th is Pitt Hopkins Awareness Day, and as much as I love our new extended family, I wish we were not a part of this day. The Bitter I try to keep things positive, but… Read More The Bittersweet Awareness Day
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Hit Bull, Find Cure
Logan is becoming quite the pro at sporting event appearances! This past weekend she was asked to be a part of the Durham Bulls game, which was being sponsored by UNC’s Children’s Research Institute. She was chosen to receive the game ball along with UNC’s new Chair of Pediatrics, Dr. Stephanie Davis. How cool is… Read More Hit Bull, Find Cure
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My Little Sea Shells
We just got back from our annual beach trip birthday extravaganza! And, it was amazing. Since big parties are a bit too much for Logan we head to the beach instead (oh, I cannot express how much I LOVE this!). We are usually there for her actual birthday, but it fell on the week of… Read More My Little Sea Shells
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Disney…We Survived!
In April we took the kids to Disney World, and guess what…we survived! We had been talking about going for a while, and decided to just do it. Those of you that plan a year in advance, I envy you. We had a small window to plan it, which I wrote about HERE. Yes,… Read More Disney…We Survived!
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Disney…How to Plan Around Special Needs
Earlier in the year we committed to doing something very brave for our crew (or any family!)…we told the kids we were headed to Disney World! Jack had been begging us to go back – we took him and Logan while I was pregnant with Wes, and we finally caved. He is such an awesome… Read More Disney…How to Plan Around Special Needs
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Coolest Bike For the Coolest Kid!
Check this thing out! This is Logan’s new bike, and it’s not just any bike. This is an adaptive bike, geared and fitted just for her. It is the ultimate therapy tool with maximum fun all in one! We have our dear friend, Rob (that’s him up above), to thank for this. Rob was one… Read More Coolest Bike For the Coolest Kid!
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Logan is in Training For…
Every year we fundraise for the Pitt Hopkins Research Foundation’s largest and most successful event of the year…UPenn’s Million Dollar Bike Ride. UPenn will match ALL donations up to $50,000, which is HUGE for our families!!! Every year our amazing friends and family help us reach our personal goal, and we are especially excited this… Read More Logan is in Training For…
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Rare Disease Day 2018
There is something bittersweet about being part of a day like today. I don’t think anyone ever wishes to be part of this community. If you are part of it, either you or someone you love is facing some undesirable circumstances. However, being a part of this day means that you have surrounded yourself with… Read More Rare Disease Day 2018
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Logan Takes Us To Atlanta!
Last week we had the opportunity to head down to Atlanta, GA…with just Logan! A clinic specifically for Pitt Hopkins was organized by a fellow PTHS mom, and founder of the Pitt Hopkins Research Foundation. It was fantastic. We had a little over a month to start planning…and stressing. We needed to bring all medical… Read More Logan Takes Us To Atlanta!