Meet Logan’s Little Pitt Sister!

This is Alexandra.  She is a beautiful little girl who was also diagnosed with Pitt Hopkins not too long ago.  I remember when her amazing mom, Nicole, introduced her family and shared their story.  I felt as if I could have written it myself.  Their journey was practically a mirror image of ours!  Nicole put together this beautiful video, which I feel captures every emotion that our family has gone through, and still goes through.  What she says in the end about her little girl really hits home with me.  Logan has the power to do the same, to light up my world just when I think it is closing in.  Please take a moment to watch this brave and touching video.  And please keep this sweet family in your thoughts and prayers.

Our family is so blessed to have such wonderful people in our lives, and we are so thankful to have our Pitt Hopkins families.  I’ve never met a more embracing, loving, encouraging and uplifting group of people in my life.  I’ve learned more from these parents than I have from most doctors, and am inspired daily by them.  No doubt we will be learning something from Nicole, Matt and Alexandra!

To keep up with sweet Alexandra check out her website, Alexandra’s Pitt Crew!  It’s fantastic!

OSEA…Heaven in a Pretty Bottle

I’m going to let you in on one of my all time favorite finds. I wish I found this company years ago, especially in my 20’s. It is the one product that makes me feel like I am back in the ocean or by the sea. The products are amazing…they are 100 % natural, non-toxic, vegan and gluten free. And…they do exactly what they claim to do! That, my friends, is very hard to find.

Osea Malibu

As you can see, it’s time to re-order!

OSEA Malibu. Unless you live in CA, or frequent upscale spas you may have never heard of them. They have a strong celebrity following, like Olivia Wilde and Jessica Biel (I follow her Instagram, and this is how I found out about it!), but they are not over saturating the beauty magazines. This is why I feel like it’s a rare gem. Have you ever noticed that the best products are the ones that aren’t plastered everywhere?!

What I like best about this line are the ingredients. They are safe and do not have anything harmful. What we put on our skin is just as important as what we put in our bodies. I started using this line when I was pregnant with Wes. We did not have any answers to Logan’s delays at that time, and I started to wonder if any of my mainstream beauty products that I was using over the years were to blame. I threw all of those away and stocked up on OSEA. I am SO happy I did! I have not turned back. I can honestly say that these products do their job!

There are so many other things that are heavenly about OSEA! Every single product smells clean and fresh. They are light, but luxurious! And, the bottles are so pretty. Very clean and simple. There is a product for every skin type too! Here are my favorites:

Ocean CleanserOcean Cleanser

This is one of their classics, and for good reason!  Made of rich minerals, proteins and vitamins, this cleanser gently removes what needs to go!  It leaves a clean, energized surface for moisturizers or serums.  This smells divine!

 

 

 

Advanced Protection Cream
Advanced Protection Cream

This is the fountain of youth!  It basically helps to regrow collagen, all while reducing fine lines and wrinkles.  It is rich, but not in a heavy way.  I do not have dry skin at all, and this has never ever felt greasy or too much.  It’s great at night, and gives an extra glow in the morning.  Since becoming a mom I’ve developed lines and wrinkles…all of which I’m sure came from all of the faces I make to entertain the wee ones!  This moisturizer continues to turn back the clock for me.  It is a bit pricey, but I’ve had the same jar for almost a year!  I use it on Logan too when she is hanging out with me while I get ready.  Her skin is absolutely perfect to begin with, and this makes it sooooo soft!

 

Ocean Cleansing MuddOcean Cleansing Mudd

I use this deep cleansing, gentle exfoliating mud once a week.  I actually like to let it sit on my skin for a few minutes.  It has tea tree and peppermint oils, which gives your skin a fresh, tingly feel.  It’s awesome in the winter…clears up your sinuses in no time!

 

 

Sea Vitamin Boost
Sea Vitamin Boost

This is my go to in the summer!  It’s a light, hydrating mist that refreshes your face while stimulating cell renewal. The Pomegranate Extract  boosts collagen, and the Red Wine Extract actually has anti-viral and anti-fungal properties!  It’s also great for skin irritations.  I spray it on Wes and all of his itchy spots.  Jack likes it too.  Logan is on the fence…she’s not a fan of light misting in her face.  Now send a big splash her way and she is one giggly chick!

 

I have yet to try all of their products, but I’ve been keeping my eye on some of them.  As I was writing the draft to this post I contacted OSEA to see if I could use some of their images.  I told them how much I loved their products, and how I loved that I could use them on everyone in the family.  I got a response within hours!  Not only were they extremely kind and helpful, but they asked to look at my blog (didn’t include the link in my original email…d’oh!).  The next day I got an email from them and fell further in love with their company.  They loved the blog, and Logie Poo!  And…they offered to send me their Anti-Aging Body Balm (on my list!!!) to try, specifically on Wes.  Wow!!!  It gets better.  I received the package within a few days, and they sent more products to try!  I was floored that they did this.  How nice and generous is that?!!

Anti-Aging Body Balm Undaria Argan Oil

They sent an Anti-Aging Body Balm, Undaria Argan Oil, some samples and another bottle of the Sea Vitamin Boost, which I had ran out of and only had the travel size left!   I cannot tell you how happy I felt, and how great my skin is feeling at this very moment.  The Body Balm is working wonders on Wes’s eczema!  I took a before picture and will take an after in a few days.  It’s amazing so far!  The Argan Oil is something I would have never thought would work for my oily/combo skin, but this may be my favorite so far.  I’ll keep you posted on these and let you know how they are holding up.

If you’ve tried OSEA I’d love to hear your thoughts!  Especially on products I’ve yet to test out.  If you’ve never tried them but would like to, they have a great return policy…even if you’ve used it!

Logan’s Birthday Tradition!

L beachLittle miss Logie turned 4 last week (!), and we just returned from her annual birthday beach getaway.  We don’t do big birthday parties for her like we would for Jack, and eventually Wes.  Those can be overwhelming for her, and we want her day to be tailored to her in any way we can.  We started this tradition on her second birthday with an overnight stay in Wrightsville Beach, NC, which was so much fun, and her very first time to the ocean.  It kills me to say that…I grew up surrounded by water and always envisioned my kids living in the salt water just like I did.  Maybe we will end up on the coast one day, but in the meantime I am thrilled that we are only a short drive away, and that they all LOVE the sea 🙂2nd bday

This trip was thrown together a few days before we Continue reading

Natural Diaper Rash Cream

Diaper Rash CreamThis concoction works way better than any store bought product I have tried!

Before Logan was diagnosed I put in endless hours of research into what could have caused, or be causing her delays.  I started to really take notice about not only what I was feeding her (and all of us), but what I was putting on her skin.  I was amazed and disgusted at what our FDA allows in products (and food!)…especially in baby products!  I found that there are far too many Continue reading

A Night With Matilda Jane

6PartyThis week I hosted two Matilda Jane trunk shows!  One in my town, and a virtual Facebook party.  Not only was I excited to hang out with my friends while shopping and sipping wine, but 20% of the sales went directly to the Million Dollar Bike Ride to benefit Pitt Hopkins Research! That amount will be doubled by UPenn!!  Woo hoo!  I haven’t gotten the final amount yet, as orders are STILL being placed!

I cannot express how THANKFUL I am for all of you who attended.  I was supported by family, my fabulous

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The Million Dollar Bike Ride

For the past 3 years the Pitt Hopkins Pedalers have been raising money for research through the Million Dollar Bike Ride. Logan is not riding this year, but we are helping out any way we can. This year every dollar raised for Pitt Hopkins (up to $50,000) will be doubled!!! So, if you are interested in helping, or know anyone who is, please click below and pass along. Thank you for taking the time to read this regardless of a donation!

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3 Kids and A Pony

LoganHTLogan has been doing hippotherapy for the past month.  It has been one of our favorite activities!  Logan adores Daisy the pony, and I love seeing her go around the arena.  She looks like such a big girl!  This is the only therapy where I can sit back and watch, so it is a nice break for me.  Unless I have Wild Man Wes with me…then it is 30 minutes of chase the baby and hope he doesn’t eat sand!
IMG_7562This week Jack is on spring break, and he has been begging me to take him along.  Logan was thrilled to have both of her brothers watch her in action!  Jack was introduced to Daisy,

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Potential Treatment!!! Wow!!!

I just received an email from Audrey Davidow (one of the amazing moms who have gotten the ball rolling on research), and am beyond excited and hopeful for Logan’s future!  The Lieber Institute was one of the first funded labs for PTHS, and they have possibly come up with a treatment!  This is amazing not only for Logan and her Pitt “siblings”, but for others on the autism spectrum.  Click below to read the full article.

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Here’s another fascinating article:

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Logan’s Version Of Pitt Hopkins

logan1

Logan, at around 2 years old.

When we were first diagnosed with Pitt Hopkins, our doctor told us not to compare Logan to the statistics that we found on the internet.  He said that since this is such a rare syndrome the information available is outdated, and certain aspects may or may not apply to her.  This was both a sigh of relief and a shock.  How is it possible that, in these modern times, there can be such little information about something affecting hundreds of children and young adults?!  It is beyond frustrating.

So, Logan does not have some of the most common characteristics of this syndrome.  She does not hyperventilate, she does not have any known

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Pitt Hopkins Video

This video was created by a Pitt Hopkins mom.  The way this group of parents and caregivers join together is simply amazing.  It’s a touching video of many of the  beautiful PTHS kids!