I was going through my emails yesterday, and noticed a promotion from a company that specializes in adaptive equipment for Logan. They had several “must have” adaptive strollers for outdoor use, and I always quickly look at these for several reasons. The main reason is that Logan is almost too big for our trusty Jeep… Read More Are These Really Fair Prices?
Logan has my dream hair. It’s long, thick, shiny, and has those perfect undone curls that turn into those envious beach waves that take forever to perfect. Unfortunately, I have no hair skills. Such a huge disappointment for both of us! I can do a ponytail and simple braids, but that is it! I’ve tried… Read More Sharing Her Locks
My posts have been hijacked by life. There have been so many wonderful things happening, and there have been some not so wonderful things (nothing big, just the usual black cloud of sickness that looms in the winter). I just have not had the time nor energy to sit down and write. Today, it is… Read More Life’s Been Busy…
This year was the year of the art show! David and I are still in awe over the New York show, and now we are completely blown away by the hearts and talents of everyone in our lives. This last fundraiser of the year was absolutely spectacular. Our niece, Lindsay chose to organize an art… Read More A Night of Art for Pitt Hopkins
Since Logan’s diagnosis people have shown their true colors, both good and bad. Thankfully, we have seen way more good…from friends, strangers, and especially family. And our recent trip (26 hours away to be exact!) to New York City showed us the good even more. About a year ago my cousin, Brian, called me out… Read More Art in the City
Whenever we feel any kind of sickness coming on, this is what we turn to first. I do my best to arm our family with things like daily vitamins, elderberry syrup and essential oils, but sometimes I just can’t keep up with it all every day. Ok, if I’m being honest, I’m lucky if I… Read More Knock Out Shot
These days there is an awareness day for just about everything. It is awesome, but very bittersweet for us. September 18th is Pitt Hopkins Awareness Day, and as much as I love our new extended family, I wish we were not a part of this day. The Bitter I try to keep things positive, but… Read More The Bittersweet Awareness Day
Logan is becoming quite the pro at sporting event appearances! This past weekend she was asked to be a part of the Durham Bulls game, which was being sponsored by UNC’s Children’s Research Institute. She was chosen to receive the game ball along with UNC’s new Chair of Pediatrics, Dr. Stephanie Davis. How cool is… Read More Hit Bull, Find Cure
We just got back from our annual beach trip birthday extravaganza! And, it was amazing. Since big parties are a bit too much for Logan we head to the beach instead (oh, I cannot express how much I LOVE this!). We are usually there for her actual birthday, but it fell on the week of… Read More My Little Sea Shells
In April we took the kids to Disney World, and guess what…we survived! We had been talking about going for a while, and decided to just do it. Those of you that plan a year in advance, I envy you. We had a small window to plan it, which I wrote about HERE. Yes,… Read More Disney…We Survived!