This concoction works way better than any store bought product I have tried! Before Logan was diagnosed I put in endless hours of research into what could have caused, or be causing her delays. I started to really take notice about not only what I was feeding her (and all of us), but what I was… Read More Natural Diaper Rash Cream
This week I hosted two Matilda Jane trunk shows! One in my town, and a virtual Facebook party. Not only was I excited to hang out with my friends while shopping and sipping wine, but 20% of the sales went directly to the Million Dollar Bike Ride to benefit Pitt Hopkins Research! That amount will be doubled by UPenn!! Woo… Read More A Night With Matilda Jane
For the past 3 years the Pitt Hopkins Pedalers have been raising money for research through the Million Dollar Bike Ride. Logan is not riding this year, but we are helping out any way we can. This year every dollar raised for Pitt Hopkins (up to $50,000) will be doubled!!! So, if you are interested… Read More The Million Dollar Bike Ride
Logan has been doing hippotherapy for the past month. It has been one of our favorite activities! Logan adores Daisy the pony, and I love seeing her go around the arena. She looks like such a big girl! This is the only therapy where I can sit back and watch, so it is a nice… Read More 3 Kids and A Pony
I just received an email from Audrey Davidow (one of the amazing moms who have gotten the ball rolling on research), and am beyond excited and hopeful for Logan’s future! The Lieber Institute was one of the first funded labs for PTHS, and they have possibly come up with a treatment! This is amazing not only for… Read More Potential Treatment!!! Wow!!!
When we were first diagnosed with Pitt Hopkins, our doctor told us not to compare Logan to the statistics that we found on the internet. He said that since this is such a rare syndrome the information available is outdated, and certain aspects may or may not apply to her. This was both a sigh of… Read More Logan’s Version Of Pitt Hopkins
This video was created by a Pitt Hopkins mom. The way this group of parents and caregivers join together is simply amazing. It’s a touching video of many of the beautiful PTHS kids!
For the past three years Logan has been our little mystery. She was born in the summer of 2012, and was by far my easiest pregnancy and delivery! She was a happy, healthy baby, full of smiles and giggles. She was a dream baby! At around 6 months we started noticing that she was not… Read More Where We Began